Leuko What?

Our life took a different turn on September 12th, 2010.

Carter was riding his bike when his brother Weston made him crash. Neither Chris or I where by Carter when this happened. Our neighbor and good friends carried him back to our house.

Upon our arrival we knew that something was not right. He said he could not walk. We noticed that his left leg was not moving as it should. Chris gave Carter a blessing and we waited for a little bit to see if we could get him to calm down.

Latter on that night we decided it was time to take him to the Hospital and make sure something was not wrong. When we got to the hospital the Dr did a physical exam and realized that there was nothing physical wrong with his leg. He than decided to order a CT of his head. When he came back to our room I could tell by the look on his face something was wrong. He said that everything looked ok from the bike accident, but that something was very wrong with his brain. He did not know what Carter had but that the white matter of his brain was not normal. To the point that he thought he brought up the wrong CT at first. He released us from the hospital and told us to follow up with a Neurologist at Primary Childrens Hospital.

The next day I was on the phone at 8 am sharp trying to make an appointment as soon as possible. Needless to say we ended up taking Carter into the ER at 1:00 that afternoon because we felt like the matter was very urgent and we need answers soon.

When we arrived to the Primary childrens ER the whole Neurology team was aware of Carter and his CT he had the night before. Having 5 Doctors show up at one time was very scary. For me that is when I knew that this was so serious. We kept on hearing the word Leukodestrophy. Neither Chris or I have ever heard of this desieas before. They started an IV on Carter and admitted Carter to the Neurology until.

The next day Carter had a Spinal tap and a MRI. With the results from these two test we knew for sure that he had Leukodestrophy. While we where waiting for the results both Chris and I came to the conclusion that whatever the outcome was that it was in the Lords Hands. We had faith that we could handle whatever was ahead.

At this point our sweet Carter was still not walking. He was very upset and wanted to go home. After two days in the Hospital we where released not knowing what the future was really going to hold for Carter. We had to wait for about 3 weeks for blood test results. We where lucky and four days after we came home Carter started walking. He could only take a few steps at a time.

Our wonderful friend, Neighbor, Angle, and Carters primary teacher helped Carter get better. I really don't know what I would of done without her. She has been a huge blessing in Carters life and mine.

It has been a slow process to get Carter to where he is now. He walks a little funny. He is going through Physical Therapy to help him.

We got the results from the blood work and found out that he has Vanishing White Matter Leukodestrophy. We are blessed to know that he has one of the slow progressing forms of Leukodestrophy. We don't know what the future holds for Carter and we don't know how long we will have him on this earth, but we know that we are blessed to be his Parents.

We have felt the Lords hand in so many things over the past two months. We have felt his tender mercies. We have truly gotten to know what Charity is. We have been on the receiving end of service and are amazed by the people who have given to us.